I was diagnosed with hypermobile spectrum disorder in February. I have experienced symptoms of my hypermobile spectrum disorder since childhood. So I’ve made this video to share what is hypermobile spectrum disorder, to help other people who might experience symptoms and not know why.
HSD is a heritable disorder of connective tissues. It affects my connective tissues, and causes joint pain. It also causes fatigue as my muscles are working harder on everyday tasks, to stabilise my loose connective tissue.
As well as this there are other conditions which can be connected to HSD. I have slow bowel motility and other digestive issues. Other connected conditions are POTs and MCAS.
I hope you find this video useful. If you do please consider sharing it, so that this condition becomes more widely known.
I made this video to show a bad day with hypermobile spectrum disorder
Amazing video thanks so much and so clearly explained! I had no idea all these symptoms could be all one condition we’re at the beginning with my 9 yr old and more and more doors keep opening. Bit scary but one week at a time x
What a brilliant video, that you have made for us. It not only explains more about hypermobility spectrum disorders but it also raises awareness about this condition. Thanks for making it. I was diagnosed in February of last year with hypermobile Eds then in the November diagnosed with hyper mobility spectrum disorder. So it’s been a bit of a whirlwind. HSD isn’t as recognised so I tell people I have HEDS as I was told they are practically the same as one another. Autism also runs in my family and we are now finding that there’s a link between both conditions. Thanks
Thank you clear video, very well done xx
Great video thank you! My 9yr old daughter is extremely hypermobile but doesn’t experience pain, dislocations etc. at the moment. Having said that, she has reported mild pain in her legs over the last few years but everyone always says its growing pains. I’d love to know how I can distinguish between the two. Her physiotherapist said that because of this, she doesn’t have ‘hypermobile syndrome’ she is just hypermobile. All this differing terminology is so confusing! We are also awaiting assessment for ASC and SPD as she certainly has difficulties with her vestibular system and other sensory areas.
Very informative and certainly the best explanation I’ve had about how HEDS fits into this as I’ve been so confused because I’m sure I have HEDS but rheumatologist said HSD.
I would love to see more about commonly comorbid conditions like POTS.
Great video, very informative and comforting. I was diagnosed with HSD Friday by a Rheumatologist but my GP had suspected hEDS, so this video has eased my confusion between the twol. I struggle with pains, subluxations, fatigue, constipation and vasovagal syncope. Also clumsy, accident prone and have poor co-ordination. Now feel inspired to make my own awareness video 🙂