I first suffered symptoms of hypermobile ehlers danlos syndrome (hEDS) when I was eight. I was finally diagnosed aged 41. This is my story, a lifetime of pain and other health issues with no answers and no solutions.
How I got my diagnosis and the steps I’ve been taking since then to improve my health and quality of life.
This is a video I made about managing the symptoms of hypermobile spectrum disorder
This is the Ehlers Danlos society who are dedicated to improving the lives of those affected by hEDS HSD and other related conditions