Oct 4, 2019 | Autistic Spectrum, Hypermobility Spectrum Disorder
I am living with chronic fatigue. My chronic fatigue is caused by my chronic health condition, Hypermobile Ehlers-Danlos syndrome. I also experience chronic fatigue because I am autistic. So processing the world is exhausting for me. Social situations also exhaust me....
Sep 20, 2019 | Autistic Spectrum, Hypermobility Spectrum Disorder
In today’s video I’ve created a guide to disability language. I’m reasonably active on social media. One of the things I’ve noticed in disability communities is discourse around the language we use to describe disability and difference. It can...
Sep 6, 2019 | Autistic Spectrum, Blog, Hypermobility Spectrum Disorder
We’ve just been to Disneyland Paris! Myself, Robo Boy and Wonder Girl went with my aunt and cousin for a long weekend. It was magical, super fun and perfect family time. I made a vlog of our trip to talk about our experience of disability at Disneyland Paris....
Jun 14, 2019 | Autistic Spectrum, Hypermobility Spectrum Disorder
This is a video I’ve been wanting to make for some time. I have been waiting for my PIP ordeal to be over before letting you all know about my experiences. The problems with PIP. PIP (personal independence payment) is a non means tested benefit to support...
May 24, 2019 | Hypermobility Spectrum Disorder
I’ve been battling chronic illness for many years. I finally found out the root cause of these issues in Jan. When I was diagnosed with hypermobile spectrum disorder. My main aim now is managing hypermobile spectrum disorder. I’m researching, and adapting...
Apr 19, 2019 | Hypermobility Spectrum Disorder
I was diagnosed with hypermobile spectrum disorder in February. I have experienced symptoms of my hypermobile spectrum disorder since childhood. So I’ve made this video to share what is hypermobile spectrum disorder, to help other people who might experience...